• Angioma Alliance Walk

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    Name: Angioma Alliance Walk
    Date: October 21, 2017
    Event Description:
    On Saturday, October 21, 2017 at Zuma Beach our 2nd Annual Angioma Alliance Walk will take place to benefit the non-profit organization Angioma Alliance, the only patient and research organization supporting those affected by cerebral cavernous malformations (CCM). We invite you to take part in this community-driven, family-friendly event. Highlights include food and refreshments, raffle, auction, entertainment, and many family-friendly activities. Angioma Alliance supports people affected with CCM, who develop abnormal blood vessel lesions in the brain that can hemorrhage and cause strokes and seizures in both children and adults. People with hereditary forms of the illness can develop many cavernous angiomas in a lifetime. Currently, brain surgery is the only treatment. Angioma Alliance is working with researchers to develop medications that will prevent hemorrhage and prevent development of more lesions. Funds from our walk will be used to support Angioma Alliance’s DNA and Tissue bank, a patient registry, an international scientific meeting, and the development of clinical centers of excellence.
    Location:
    Zuma Beach
    Date/Time Information:
    9:00 AM Registration 10:00 AM Walk
    Contact Information:
    Stephanie Alband
    Fees/Admission:
    Raise or Donate $35 and you will receive a t-shirt.
    Contact:  salband@angioma.org
                  (442) 615-9221
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